Microcystic Adnexal Carcinoma

5/12/09 About Face The title for this entry is to facilitate a “google” search for someone who might have just been diagnosed with MAC and has no idea about this cancer---probably the doctor doesn’t know much either. It was my daughter Molly’s diligence in her google search that led her to Germany and “my” Michèle, whose journey with MAC is a year ahead of mine. She has been my encourager, reality checker, prayer warrior and friend. Nothing quite bonds people like being on the same side of a suffering. To have not only found a MAC survivor but to have found one who walked that long, daunting road of the unknown with God has been one of the greatest blessings of this “dance” of mine. I hope to become that for someone as well---plus, I can introduce him/her to Michèle and her journey and he/she can be really blessed. The sub title is the next step that I’m experiencing as I am getting ready to return to work next Monday. I’m not sure if I’m trying to prepare my HHS friends or myself. I know that the results are better than I, and my doctors, ever dreamed they would be. For that I am grateful. I know that I, by Dr. Ha’s recommendation, need a lifestyle change about sunlight---wearing a mask and hat or both are necessary. The mask is easier for quick trips involving sunlight. It also hides the mucus that easily flows from my “new” right nostril without me feeling it ‘til it reaches my chin. Dr. Ha says it’s because my mucosa went into shock during the surgery and is now waking up. And the lips it flows over have no feeling and never will---at least that’s what I understood from a nerve discussion we had. I also drool out of the right side of my mouth for no apparent reason and actually have lip exercises for that and other eating difficulties---all of which seem to improve weekly. I guess those “lip calisthenics” are working. At this point public salad slurping and cereal eating are out of the question but I can eat most anything in smaller bites, especially on my left/good side. I still use a straw for drinking---it’s just easier and more comfortable. I keep some with me at all times---they help me with heat---which I can’t feel as well. That’s the physical part. The other part deals with my new look---not bad, but different---maybe not even permanent. Those who know me think it looks great---what else can they say, right? Considering every other possibility it is good but lets just say I don’t relish having my picture made. I have seen others look askance and feel their discomfort. That’s the way society is---I’m praying that I will become more sensitive in a positive way to folks with disfigurations of any kind. Even now I see God’s great goodness in my unusual lips and flat nostril. As God would have it, I went to Michèle’s blog to see her latest posting. I “accidentally” clicked the bookmark that went to her June 12, 2008 posting---written just 2 days after her mohs surgery to remove her tumor. She has not had to have reconstruction. She is such a writer---I just copied a few of her words---on her blog, the words are interspersed with exquisite pictures and I will include the URL at the end (& as a gadget) so you can see the pictures for yourself or read more of her struggle with beauty, especially where weight is concerned. Read only if you want a real blessing! Thanks Michèle. Once again you have written words that are in my heart and have encouraged me as only you can. I, too, see God’s name written in my wound and to that I say, “A-men!”

• As I've spent so much time looking at the world around me through the lens of my camera, I've been prompted to think about beauty. Another factor in my beauty-musings might be the decidedly unflattering aspect of my own face these days, pictured here two days after my surgery. The word "ew" doesn't really do it justice--and I'm referring to the incision, swollenness and stitches, not to my lack of makeup!

• Is beauty the aesthetic tyranny of unachievable and unnatural standards tattooed on our subconscious minds by a media barrage of pictures and diet ads and clothing styles? Not only is flawless beauty promoted as a means to happiness, love and wealth, but the ads have increasingly gone one step further, demonizing aspects of the human (and female) anatomy that are the normal attributes of real bodies engaged in the aging process: wrinkles, cellulite, sagging appendages and shifting weight distribution.

• Beauty was in the kindness of strangers and the faithfulness of friends. More than ever, I am convinced that beauty is not about how a person looks. It is most clearly displayed in that person's motivations and how he/she touches the lives of others. (Psalm 27:13)

• On a spiritual level--an all-encompassing level, really--the ultimate beauty of my life has been in God's answers to the prayers of so many: in a smaller tumor than expected, in benign other "bumps" on my face, in a smaller wound than anyone had predicted and in an incredibly fast-healing scar. Beauty is in a faith that has allowed for peace despite the medical uncertainty. It is...and has been...in God.

We sang a chorus by Keith Getty on Sunday. One of the lines went: "Oh, to see my name written in your wounds." The lyrics moved me because they made me realize that it is actually His name that is written in my wound. And though I hope it will some day become less visible, each time I catch a glimpse of it, I am reminded of God's incredible sustenance throughout this McJourney. And there is great--GREAT--beauty in that. http://serenitymine.xanga.com/?nextdate=6%2f12%2f2008+23%3a58%3a1.700&direction=n Because this might not link from here, I'll add it as a gadget above Seeing God's Hand---then just a double click should open it. Also, once you've finished reading the 2008 blog entry, you can click on Serenitymine in the upper left corner & it will take you to a current one where she lists "rules for living" for her graduating seniors---a worthy read for all of us.